11-12-09 Jordan Update

Folks, here’s the latest on Jordan.

The bone marrow test results came back, and the diagnosis is Acute Lymphocytic Leukemia.  This is actually good news, as this is the more common of the two acute leukemias, is treatable, and has high percentage survival rates.  For more info on ALL from the Leukemia & Lymphoma Society, click here.  The doctors have now put together a road map for Jordan’s treatment.  It is as follows:

For the next 7 days, Jordan will receive aggressive chemotherapy and steroids.  At the end of 7 days, they will do another bone marrow extraction – and the results of that test should show that he is cancer free.  If so…

He will receive aggressive chemotherapy for the next month, and they will wean him off of the steroids.  At the end of that month, another bone marrow extraction, and he should be cancer free.  If he’s still cancer free…

He will continue to receive aggressive chemotherapy for 7 months, and no steroids.  At the end of the 7 months, another bone marrow extraction, and another cancer free test.  If he’s still cancer free…

He will be able to continue his chemotherapy orally (no more IV) for the next 2 to 3 years.

Jordan is now 2 and a half.  If all goes well, by the time he is 6 years old, he will no longer need chemo.

If any of the bone marrow tests I just mentioned still show cancer, then we can only assume the treatment gets worse, and for longer.

And now the good news…

Jordan is doing well today, and experiencing little to no soreness from the bone marrow extraction yesterday.  Thank you for your prayers!  They worked!

Additionally, the doctors think they can send Jordan home from the hospital (to do his chemo as an outpatient) in 4 to 5 days IF he’s regular.  He’s been very constipated the last few days, and extremely uncomfortable because of it.  Tonight, he finally pooped.  Hooray for poop!  If he keeps pooping, he can be released from the hospital.  This would be so good for so many reasons.  It would be so much more restful, comfortable, and familiar for him at home.  A small sense of normalcy can do wonders for a child enduring such suffering.

So…prayer list:

Pray that Amy and Phil find peace, and are strengthened.  This will be a constant need.
Pray that Jordan continues to poop – so he can go home!
Pray that in 7 days, Jordan is cancer free.  And begin praying that a month after that, and 7 months after that, and for the next 3 years, Jordan continues to respond well to the treatment and be cancer free.
Pray that Jordan’s little body is strengthened and protected from the chemo.  Pray that he experiences none of terrible side effects that are so often associated with poisoning a young and growing body.  Pray that his immunity remain uncompromised and that he stay healthy throughout.

There are lots of people who want to volunteer, give money, and help out in whatever way…  We’re still processing some details, and will keep you all in the loop as needs arise.  Phil and Amy will definitely need our help – but timing is key.  So, stay tuned, and just keep praying, hoping, and doing whatever you do to rally emotionally and spiritually around this little boy and this precious family.  The hard times are just beginning, but there is hope.  There is infinite hope.

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